Hysterectomy, anyone?

Lori JLori J Posts: 52Registered Users
Hi Girls,

Have any of you had a hysterectomy? If so, could you share your experience?

I have severe endometriosis, and after two surgeries, the endometriomas keep coming back and each time they are bigger. My left ovary was removed after my first surgery in Sept, so my right is shouldering all the burden. My doc says it's time for a hysterectomy. I've spent the past 8 months radically altering diet (and lost 40 pounds) and doing all kinds of natural remedies, but I've not gotten this thing under control. I'm thinking the operation is the right course of action now. I also got a second concurring opinion. I'm 42 and have an almost-14-year-old son; I gave up trying for another child at 35, after several years of unsuccessful attempts. Endo wasn't diagnosed till last August.

Any advice on this would be so appreciated!

:)

Lori
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Comments

  • GracedGraced Posts: 10Registered Users
    I had one three years ago and am soooooooooooooo glad that I did.
    I tried to seek out other options, but the hyst was the best option for me. I was able to keep my ovaries, though, and my ovaries still work in providing me my own hormones.

    My very best to you in your own situation. (((((((you))))))))
    To everything there is a season. Make the most of the moment wherein you find yourself.
    ~*~*~*~*~*~*~*~*~*~*~*~*~*~*~*~
    Corkscrew canopy atop a botacelli foundation--3C over 3B.
  • Lori JLori J Posts: 52Registered Users
    Thanks so much for your reply, Denim! Glad you're doing well.

    :)
    Lori
  • SystemSystem Posts: 39,059 Administrator
    I had one ten years ago (total) and I've been on HRT ever since. Best thing I ever did!
  • Lori JLori J Posts: 52Registered Users
    Thanks, CurlySuz. How is the HRT? You can PM me if you want. I'm a little nervous about the HRT since I have endometriosis.

    :)
    Lori
  • skywatcherskywatcher Posts: 429Registered Users
    I am not 40 yet, but when I was 37 I had a hysterectomy. It was the very best decision that I could have made. I had so many problems before & now I feel sooooo very much better! :D It seems that you have explored alternative treatments & those have not worked, so if I were you, I would have the surgery. I put it off for over 2 years, but I wish now that I had not because of how much better I feel since. 8) I was also lucky enough to be able to keep my ovaries, so I don't have to take hormone replacement either.

    Good luck & best wishes :D
    3a/2c
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  • Lori JLori J Posts: 52Registered Users
    Thanks, Skywatcher! I am glad this was a good thing for you and also that you didn't need HRT. No pain is a good way to live!

    :)
    Lori
  • SystemSystem Posts: 39,059 Administrator
    If you still have your ovaries (or even one ovary) you don't need HRT, but if you had a hysterectomy prior to menopause, you probably will do a lot better with some type of HRT. Having a total hyterectomy will put you in menopause immediately and since it's not the natural way to go through menopause, you lose a lot of bone density and your hormone levels drop down suddenly. There are a number of other changes you go through too with surgical menopause.

    I'm on a type of HRT that is mostly estrogen with a touch of testosterone. I take it for 27 days and then am off for 3 days. I've never felt better in my adult life after having so many bad years of heavy periods, pain and feeling "off" for weeks at a time during a month.

    I believe this is what keeps me "young" and gives me a youthful appearance. I have a lot of energy also, for a 54 year old woman.
  • Lori JLori J Posts: 52Registered Users
    Thanks, Suz. I have one ovary, which is giving me all the trouble, so that will definitely come out. My doc already said HRT is a must for me.

    Glad the hyst was a good thing and you're feeling so good because of it. I look forward to that too!

    :)
    Lori
  • kinkeecurlfrizzkinkeecurlfrizz Posts: 11Registered Users
    I had one in oct1998. I still have one ovary left. Best thing I ever did. My periods were HORRIBLE!!!! I had fibroids, they were huge. I tried everything nothing worked. I even became a vegetarian, that didn't work either. The only thing about being a vegetarian, I had an extremely low cholestrol count. Like I said best thing I ever done.
  • Lori JLori J Posts: 52Registered Users
    Thanks, Kinkee. I did the vegetarian thing, too. While it didn't help with the endo, it was definitely a positive change for me--I still eat that way.

    :)
    Lori
  • kinkeecurlfrizzkinkeecurlfrizz Posts: 11Registered Users
    I am trying to get back to eating that way.. everyone says soy is bad for you of all of a sudden. !!!!!!!!!!!!! I am still resarching on soy product. I really miss 8th Continent soy milk. Like a chocolate milk shake!!yum.

    Didn't mean to get off topic.
  • Lori JLori J Posts: 52Registered Users
    I know what you mean about the soy. Since I have the endo happening, soy is not my list of okay foods. I miss coffee, chocolate and pizza. Sigh.
  • Lori JLori J Posts: 52Registered Users
    The date is set: June 26. I got four, count 'em four, opinions on this, and the hyst is the right thing to do. Of course, I'm nervous and am not looking forward to the pain, but I am looking forward to no more periods and no more endo pain. (Especially since I am now having the worst period I've had in almost a year!!!)

    Thanks very much to all of you who shared your advice and stories. They are much appreciated. Send positive vibes for quick healing, sistahs!

    :)
    Lori
  • CitznMagCitznMag Posts: 66Registered Users Curl Neophyte
    Lori J wrote:
    The date is set: June 26. I got four, count 'em four, opinions on this, and the hyst is the right thing to do. Of course, I'm nervous and am not looking forward to the pain, but I am looking forward to no more periods and no more endo pain. (Especially since I am now having the worst period I've had in almost a year!!!)

    Thanks very much to all of you who shared your advice and stories. They are much appreciated. Send positive vibes for quick healing, sistahs!

    :)
    Lori

    So sorry I saw your post so late. (Haven't been online for a while.)
    Hope that at this time you are recovering nicely.
    Sending positive healing vibes your way~~~~~~~~>

    I had a total hysto (keeping ovaries) at 36 due to large fibroids (sp?) causing lots of pain and loooooong periods (heavy flow lasting more than two weeks at a time). I have absolutely no regrets. I do occasionally have phantom periods . Every so often I'll feel a sensation of a flow and bolt up and run to the bathroom to check and then laugh. Before my hysto, this was a regular occurrence--always worried my flow would come through the tampon/heavy pad I wore for most of the month. Regardless of the weather, an extra sweater was always with me in case it needed to be wrapped around my waist. The worst part, once I decided a hysto was the solution, was to get a doc to agree with me. Doc after doc tried to lead me to alternative treatments (birth control pills/laser something or other/change in diet). I finally got the last Doc to agree after crying hysterically in his office that if he didn't recommend me for surgery, I was going cut out this "wasteful bloody organ" myself. Five years later I am healthy and happy (knock on wood). I had a recovery party and gave out wrapped tampons as party favors (I had sooo many left).

    _________________
    3b&c mix, CO (most of the time)
  • Lori JLori J Posts: 52Registered Users
    Thanks for sharing and for the positive vibes! Glad you're doing well now.

    :)
    Lori
  • nepanthenepanthe Posts: 292Registered Users
    I had one in 1998..Best thing I ever did. I remember,2 weeks before my period I had to prepare. I wore a lot of black., bought huge pads and tampons, made sure my 2 heating pads were working, had enough ibuprofen and soup errands were done and grocery shopping done.. Most important made sure the cable bill was paid, because the only place i could go to was work and back home again. :lol:
  • nepanthenepanthe Posts: 292Registered Users
    Does anyone have problems with adhesions(scar tissue)? If so how do you deal with this?
  • LongcurlsLongcurls Posts: 23Registered Users
    Had one for my 35th birthday & an emergency ovarectomy 18 months later. Best thing I ever did. I did have problems after the ovaries were removed adjusting the hormone level, patch actually overdosed me 4 times the amount I was supposed to have. I'm 50 now & do bio identical hormone therapy. They do blood tests & see what your levels are & they compound what you are lacking. I haven't had a sex drive for 9 years & now I do. Whenever you take estrogen pills your liver dilutes what you actually recieve. My testosterone level when I started the therapy was 0 I am now up to 70% & can go to 100%. They insert pellets into your hip which are supposed to last 4-6 months, I am now at 5 months & feel so much better.
    3A or B with an underlay of 2B.Matrix Curl Life Shampoo,Curl Life Extra Intense Conditioner,Paul Mitchell Medium Hold Sculpting Foam,John Freida Downplay Volume Reducer
  • Lori JLori J Posts: 52Registered Users
    Hi Nepanthe,

    I know you posted this a long time ago, but I just read it! I think I am having adhesion pain. That, or the endo is back in full force. I had an ultrasound two weeks ago, but nothing showed up. I didn't really expect it to, since I have no organs for any endometriomas to grow on. I should see/speak to my doc this week. I will let you know what he says. He was very cautious about diagnosing the pain as adhesion pain, though. It really hurts! As much as before the surgery, when I had a pelvic cavity full of endo. What are you doing to handle the pain? PM me if you want to compare notes.

    Loncurls, the hormone fluctuation is really kooky. So glad you got yours figured out. I am doing bioidentical progesterone, no estrogen because of endometriosis, but I still haven't figured it out fully.

    :)
    Lori
  • LongcurlsLongcurls Posts: 23Registered Users
    I think maybe I do have some adhesion pain it is one the sides where my ovaries were but it's not unbearable, my internist even misdiagnosed it as diverticulitis!! I'm sorry that you are having pain.
    3A or B with an underlay of 2B.Matrix Curl Life Shampoo,Curl Life Extra Intense Conditioner,Paul Mitchell Medium Hold Sculpting Foam,John Freida Downplay Volume Reducer
  • nepanthenepanthe Posts: 292Registered Users
    Lori J wrote:
    Hi Nepanthe,

    I know you posted this a long time ago, but I just read it! I think I am having adhesion pain. That, or the endo is back in full force. I had an ultrasound two weeks ago, but nothing showed up. I didn't really expect it to, since I have no organs for any endometriomas to grow on. I should see/speak to my doc this week. I will let you know what he says. He was very cautious about diagnosing the pain as adhesion pain, though. It really hurts! As much as before the surgery, when I had a pelvic cavity full of endo. What are you doing to handle the pain? PM me if you want to compare notes.

    Loncurls, the hormone fluctuation is really kooky. So glad you got yours figured out. I am doing bioidentical progesterone, no estrogen because of endometriosis, but I still haven't figured it out fully.

    :)
    Lori

    My doctor states my pain is in my imagination..He keeps asking me if I have nausea, vomiting or diarrhea. I keep saying no. So therefore he thinks I am not having pain..I finally told him, that just because I am not having any of those symptoms does not mean that I don't have pain..He makes me so sick..I remember when I first started having pain back when I lived in Atlanta..my ob-gyn at the time told me that adhesions were the cause of my pain..Since the pain was minor I was fine at the time..however there are times when I just want to scream..The Doctor that said I had adhesions, was arrogant but I did appreciate him for getting to the source of the pain. My doctor he , I just do not enjoy wimpy doctors..
  • Lori JLori J Posts: 52Registered Users
    Nepanthe, find a new doctor!!!

    Longcurls, thanks, I'm sure I'll figure it out. Wow, I'm glad you realized you did NOT have diverticulitis! I really wonder how some of these doctors get into and out of med school and become gainfully employed. Scary.

    :)
    Lori
  • LongcurlsLongcurls Posts: 23Registered Users
    Same thing happened to me back when I had my hysterectomy. I had bled non stop for 14 1/2 weeks & had so much back pain that my legs were giving out, my doctor put me on the pill to slow the bleeding & told me I must have strained my back. I got a second opinion & had emergency surgery within 2 weeks. I had a lot of fibroid tumors the largest resting in my dorsal nerve which was causing the back pain & legs giving out. I think doctors really don't know that's why they call it "practicing" medicine, plus most of them are men! I'll say a prayer you get a good doctor. In my case the first doctor was older I had been with him for years but the 2nd doctor who listened to me was young right out of school, I think that the younger doctors know a lot more than the older ones. Good luck.
    3A or B with an underlay of 2B.Matrix Curl Life Shampoo,Curl Life Extra Intense Conditioner,Paul Mitchell Medium Hold Sculpting Foam,John Freida Downplay Volume Reducer
  • Lori JLori J Posts: 52Registered Users
    Thanks, Longcurls! I'm glad you found someone who listened and helped you and found the real cause of your pain. It's really hard to be in pain, tell people you're in pain and have them either not believe you or tell you it's all in your head. I found an endometriosis specialist in San Jose, so I am going to talk to him. Apparently, it's not uncommon for some people to have endo persist after a hyst and still be in pain. Oy!!

    Glad you're pain-free.

    :)
    Lori
  • donnafinadonnafina Posts: 43Registered Users
    So, Lori, they took your other ovary, too? How are your hormones?
    2b-3c depending on the weather, conditioner, length, etc.
    Going grey since April, 2006. No cutting since May / June, 2006.
  • Lori JLori J Posts: 52Registered Users
    Yes, Donna, they took both of 'em! My hormones are not too bad, all things considered. I can't do any estrogen because of the endo, so I've been doing bio-identical progesterone cream and lots of vitamin/mineral supplements for my adrenals. The worst thing, really, is that I'm very hungry a lot of the time, but as long as I stay away from sugar, I sleep pretty well and don't have many warm overs. (I'm not even getting full-blown hot flashes.)

    Are you having hormone challenges?

    :)
    Lori
  • kinkihairkinkihair Posts: 54Registered Users
    I had a radial hysterectomy 2 years ago as a result of uterine cancer. I'm 43 now and in menopause, but no HRT because of the risk of cancer recurrence.
    nappy haired girls unite!


    afro-american 4a/3b
  • donnafinadonnafina Posts: 43Registered Users
    Lori J wrote:
    but as long as I stay away from sugar, I sleep pretty well and don't have many warm overs. (I'm not even getting full-blown hot flashes.)

    Are you having hormone challenges?

    :)
    Lori

    Glad you're not having too many symptoms! I have trouble sleeping and am hot all the time. Sometimes my face flushes out when I eat or drink something, :oops: but not what my mom described as hot flashes- just hot most of the time- It really saves money on heating in the winter! :D
    2b-3c depending on the weather, conditioner, length, etc.
    Going grey since April, 2006. No cutting since May / June, 2006.
  • Lori JLori J Posts: 52Registered Users
    I hope that passes soon, but I hear you on the heating! I sleep with no pjs and that really keeps the night warm overs to a minimum.

    kinkihair, I'm 43, too. I hope your symptoms aren't too bad, and I hope you're feeling good.

    :)
    Lori
  • CurliLocksCurliLocks Posts: 10,573Registered Users Curl Connoisseur
    I think I'd like to get a hysterectomy. I'm getting genital prolapse (only had one child but tore inside), I have recurring mild to moderated dysplasia on the cervix (what's left of it after 3 LEEPs). So I'd just like to take it all out! :evil: I only have one ovary and I'd like to keep that, but everything else can go. I'm only 42.

    This is embarassing to admit, but it's getting uncomfortable to have relations with my husband. It feels like everything is getting pushed around, puts pressure on the bladder and bowels, etc. :oops:

    Maybe I should start a prolapse thread. :?
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