CurlTalk

might have PCOS..

curlicarlycurlicarly Posts: 242Registered Users
So, I found out that I might have PCOS. :sad1: How does it affect your hair? I've read a little about hair loss, but I have the thickest hair on the planet so that could be a good thing.Also, if I have to go on birth control (for the PCOS) would that affect my hair too? Ughh I really hope not. Thanks :)
3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
Avoiding humectants and protein!

Comments

  • MimsTXMimsTX Posts: 3,482Registered Users Curl Neophyte
    I never noticed much of a different in my curls on BC, versus off. Some people have said their curls get looser, others say they get tighter... *shrug* like everything else, it really just depends on your body I think. Mine hasn't really changed though.

    I had REALLY thick, abundant hair prior to my hormones going completely out of whack right before I got diagnosed with PCOS. It's definitely thinner now, than it was before, but new hair's always coming in to (hello flyaways) so I don't think it's necessarily a permanent thing.

    Follow your docs advice, if you do have PCOS, and things will probably be fine. Diet, exercise and BC pills will probably be more than enough to keep it under control, and keep your hair from thinning (among other things).

    Good luck though. I know it's not an easy thing to deal with. Still, there's lots of PCOS curlies on here, I think, so someone should always be around to talk to if needed :)
    CG/Mod CG (soap bars) since 8/12/08
    CO wash/Cond: Kathymack & Flowermoon Castille soap bars, V05 Chamomile Tea, Suave Ocean Breeze, Biolage Conditioning Balm
    Styling loves: DIFFUSING! CK, KCNT, KCCC, FOTE (on dry hair only), Re:coil, Proclaim gel
    Not sure about: Boots, Tweek, KBB Milk, DMHJ
    HATE: plopping, FOTE on wet hair, BRHG
  • curlygirlymecurlygirlyme Posts: 1,340Registered Users
    My advice is to get a second opinion. Did they check to see if your glucose intolerant? Most people assume that if you don't have a weight problem than you aren't, but that's simply not true. My husband’s aunt was dx at 16 as PCOS and put on birth control. She has been on it nonstop for 21 years. She just got tested and finally found out that she in glucose intolerant and that she can have children (which is something she was told was impossible). She was really upset that it took so long (she is almost 40 now) and doesn't feel comfortable having children so late in life. My point in this long winded story is that birth control is not always the answer and can make things worse... make sure you find an open minded doctor who is willing to try several options to find what fits your best. As far as hair loss... I had a ton of hair my entire life, my PCOS got so bad (before I found a good doctor) that I lost a ton of hair (way too much). Once I got things under control it started to come back but it's not 100% the way it used to be. I hope that once I'm back to a normal it will come back.
  • curlicarlycurlicarly Posts: 242Registered Users
    Thanks mims and curlygirly :)
    My advice is to get a second opinion. Did they check to see if your glucose intolerant? Most people assume that if you don't have a weight problem than you aren't, but that's simply not true.

    Well, I'm being tested this week, so I'm not sure yet if I have it or not. Yeah, I thought it was weird at first that I could have PCOS because I'm almost underweight. : /
    3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
    Avoiding humectants and protein!
  • MimsTXMimsTX Posts: 3,482Registered Users Curl Neophyte
    it might be that you have what curlygirlyme described, rather than PCOS... but it IS possible to have PCOS and not be overweight. I actually worked with a girl, the most petite person imaginable. 4'11, MAYBE 100lbs. She had the worst case of PCOS imaginable. Several surgeries to remove cysts that were too large on her ovaries.

    It's a bit more rare, but it does happen unfortunately.
    CG/Mod CG (soap bars) since 8/12/08
    CO wash/Cond: Kathymack & Flowermoon Castille soap bars, V05 Chamomile Tea, Suave Ocean Breeze, Biolage Conditioning Balm
    Styling loves: DIFFUSING! CK, KCNT, KCCC, FOTE (on dry hair only), Re:coil, Proclaim gel
    Not sure about: Boots, Tweek, KBB Milk, DMHJ
    HATE: plopping, FOTE on wet hair, BRHG
  • curlygirlymecurlygirlyme Posts: 1,340Registered Users
    That was my point, but I guess I didn't make it very well. My husbands aunt is underweight and glucose intolerant. I'm overweight and glucose intolerant. The point I was trying to make (forgive me it was late last night) is that you can be at the end of each extreme and still be glucose intolerant. It seems odd, but it can happen.
  • curlicarlycurlicarly Posts: 242Registered Users
    That was my point, but I guess I didn't make it very well. My husbands aunt is underweight and glucose intolerant. I'm overweight and glucose intolerant. The point I was trying to make (forgive me it was late last night) is that you can be at the end of each extreme and still be glucose intolerant. It seems odd, but it can happen.

    I went to the doctor today and they want me to come in next week for some kind of glucose tolerance test.. something with fasting and waiting and taking blood. Eeeeek I'm really afraid of needles!! O_O
    3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
    Avoiding humectants and protein!
  • MimsTXMimsTX Posts: 3,482Registered Users Curl Neophyte
    it's nothing major. Just a "don't eat or drink anything for so many hours before" and then you go in and they take some blood samples.

    If you ask for a butterfly needle, it's about as painless as it gets.
    CG/Mod CG (soap bars) since 8/12/08
    CO wash/Cond: Kathymack & Flowermoon Castille soap bars, V05 Chamomile Tea, Suave Ocean Breeze, Biolage Conditioning Balm
    Styling loves: DIFFUSING! CK, KCNT, KCCC, FOTE (on dry hair only), Re:coil, Proclaim gel
    Not sure about: Boots, Tweek, KBB Milk, DMHJ
    HATE: plopping, FOTE on wet hair, BRHG
  • curlicarlycurlicarly Posts: 242Registered Users
    MimsTX wrote: »
    it's nothing major. Just a "don't eat or drink anything for so many hours before" and then you go in and they take some blood samples.

    If you ask for a butterfly needle, it's about as painless as it gets.

    Ohh, she did say something about a butterfly needle. But, yeah, I still freaked out so much that she wrote me a perscription for ativan XD Lol I'm pretty weird.
    3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
    Avoiding humectants and protein!
  • MimsTXMimsTX Posts: 3,482Registered Users Curl Neophyte
    lol, I know lots of people who are the same way about needles.

    Definitely ask for the butterfly needle, DON'T LOOK AT WHAT THEY'RE DOING, and tell the tech about your fear. Maybe she can talk to you about other things while it's going on, to take your mind off it :)
    CG/Mod CG (soap bars) since 8/12/08
    CO wash/Cond: Kathymack & Flowermoon Castille soap bars, V05 Chamomile Tea, Suave Ocean Breeze, Biolage Conditioning Balm
    Styling loves: DIFFUSING! CK, KCNT, KCCC, FOTE (on dry hair only), Re:coil, Proclaim gel
    Not sure about: Boots, Tweek, KBB Milk, DMHJ
    HATE: plopping, FOTE on wet hair, BRHG
  • WurlyLoxWurlyLox Posts: 4,858Registered Users
    It's when the PCOS causes you to become insulin resistant that you'd usually see the weight gain and most reproductive problems. If the doctor's really up on PCOS, they should test insulin and testosterone levels intially and then periodically after that. If they're too high, they'll probably put you on Metformin. Not for infertility but because I suspected PCOS and already knew I had a very large cyst (plus others), I go to a reproductive endocrinologist, a top infertility, and thus PCOS, specialist and researcher.

    You might want to check out www.soulcysters.net and www.projectpcos.org/ if you don't already know about them.
    2C/3A/3B - modified CG - fairly fine now, normal/low porosity/normal elasticity

    Current Main Rotation: MG217 medicated or Aim2Health 'poos for scalp, Elucence cond., Spiral Solutions Protein & Deeply Decadent Cond., CJCCCC reg or lite,CJ Pattern Pusha,, Giovanni LA Hold Hair Spritz + lots more, sporadically

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  • nynaeve77nynaeve77 Posts: 7,135Registered Users
    I never noticed anything with my hair, except the stray ones I have to pluck off my chin!

    PCOS is definitely something that can be controlled with diet, exercise, and a couple of meds. Good luck to you!
    "Maybe Lucy's right. Of all the Charlie Browns in the world, you're the Charlie Browniest."--Linus, A Charlie Brown Christmas


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  • curlicarlycurlicarly Posts: 242Registered Users
    Well, I had my glucose tests yesterday.. Lol I'm so insane, right after the first test I fainted! It was horrible. But they got me up with some smelling salts and I was ok after that. :D Well anyways, I'm awaiting my results.

    Thanks for the cool websites, auntnett!
    3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
    Avoiding humectants and protein!
  • nynaeve77nynaeve77 Posts: 7,135Registered Users
    Aw, you poor thing! I've only fainted once and it was embarrassing.

    I hope your results come back quickly and give you the answers you need!
    "Maybe Lucy's right. Of all the Charlie Browns in the world, you're the Charlie Browniest."--Linus, A Charlie Brown Christmas


    My fotki: /home/leaving?target=http%3A%2F%2Fpublic.fotki.com%2Fnynaeve77%2F" class="Popup
    Password: orphanannie
  • curlicarlycurlicarly Posts: 242Registered Users
    nynaeve77 wrote: »
    Aw, you poor thing! I've only fainted once and it was embarrassing.

    I hope your results come back quickly and give you the answers you need!

    Lol, it was quite embarrassing. Especially when they wheeled me down the hall :lol:
    3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
    Avoiding humectants and protein!
  • curlicarlycurlicarly Posts: 242Registered Users
    Well, today I was diagnosed with PCOS. :( I'm going on BC. Anything I need to know?
    3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
    Avoiding humectants and protein!
  • kaymoorekaymoore Posts: 298Registered Users
    I had no problems with thinning hair or hair loss after being diagnosed with PCOS. But I was put on Yasmin and it made me loopy. It really messed with my hormones completely. I totally fared better on Ortho Cyclen. Hopefully, you have no bad reactions to medication.
    http://public.fotki.com/kaymoore/

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  • curlicarlycurlicarly Posts: 242Registered Users
    They put me on Loestrin24Fe. Does anyone have any experiences with it?
    3b/c coarse, porous (I think), and THICK! Mod CG since: 10/11/08
    Avoiding humectants and protein!