PCOS questions

SJWavesSJWaves Posts: 51Registered Users
I'm pretty new to these boards, but I noticed other people talking about PCOS and I have questions. My OB/GYN thinks I might have this, so I am scheduled for an ultrasound in a couple of weeks. She is basing this decision on my lab results showing I had a 3:1 ratio of LH:FSH. I'm pretty freaked out right now because my fiance and I want to try for a baby soon after we get married. From what I understand, this will be very difficult with PCOS.

Symptoms:
~Acne that won't respond to Retin-A, BP and antibiotics. I even get cysts on my neck of all places.
~Hair loss ever since I went off the pill 9 months ago. In fact, my hair issues are what brought me to NC.com. I was looking for ways to protect my delicate hair and make it look nicer.
~Pains in left ovary. My abdomen is also tender to the touch and swollen most of the time.
~Unable to lose weight even though I exercise about 5X per week and eat moderately.
~I feel like I have constant PMS. Moodiness, sudden weight gain, bloating, headaches. Meanwhile, my cycle is becoming more and more irregular. In fact a few times I was about to go to the store to purchase Clear Blue easy tests just in case. That and the bloated belly and moodiness have tricked me a few times this year. Then AF finally starts. The thing is, my cycle is irregular for me, but it does happen somewhere in the range of "normal". It just seems to be moving to a longer length than I had in the past.

Does this sound like PCOS? The nurse said stress could mess up my hormones, but would it mess them up this much? My only stress last year was working and going to college at the same time. This year, it's planning a wedding.

I would join a PCOS support group, but until I know for sure I would rather wait on that. I'm worried because I want a baby so badly. The other things bother me as well, but that is my primary goal for the next year or so after the wedding.

Anyhoo. I guess I just need to talk with people who understand these symptoms. My finace is supportive, but he doesn't now how I feel inside about all of this.

TIA ~SJ
2-3A mix
Newly CG
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Comments

  • SunshineGrrlSunshineGrrl Posts: 3,823Registered Users Curl Neophyte
    I would wait until the ultrasound and more testing is done to give you a conclusive answer. I agree with the nurse that stress can cause the same symptoms.

    And people with PCOS have babies all the time. It may be more difficult, but it's very possible, esp if you're having periods on a semi-regular basis. Do not despair, there is hope.

  • SJWavesSJWaves Posts: 51Registered Users
    Thank you.

    I hope there's nothing wrong. I guess getting worried is only going to make me feel worse. I just wish I could do the ultrasound right away so I could find out the results. It's easier to deal with something when you know what you're facing.

    I'm sure I could try harder with my weight loss efforts. I'm just used to being effortlessly thin, so I'm kind of lazy. My age is probably getting in the way there, though. I'm 35 and supposedly it gets harder at around this age and you can't just eat junk anymore. On the bright side, at least biotin and pre-natal vitamins have thickened up my hair.
    2-3A mix
    Newly CG
    No faves yet
  • nynaeve77nynaeve77 Posts: 7,135Registered Users Curl Novice
    It's definitely not impossible to get pregnant with PCOS. My sister-in-law has it (I do, too) and she conceieved naturally 3 times. I have a more severe case, but was still able to get pregnant with a little help from some hormone therapy, metformin, and artificial insemination.
    "Maybe Lucy's right. Of all the Charlie Browns in the world, you're the Charlie Browniest."--Linus, A Charlie Brown Christmas


    My fotki: http://public.fotki.com/nynaeve77/
    Password: orphanannie
  • SunshineGrrlSunshineGrrl Posts: 3,823Registered Users Curl Neophyte
    nynaeve77: Oh, you give a girl hope! Well, maybe another girl. I don't personally want to have kids (can you say freaky? It's like having your body taken over by an alien!), but my sister does. She's got some freaky stuff going on, though. Has to shave more often than her husband (Not that there's anything wrong with that, just problematic for conception).

  • SJWavesSJWaves Posts: 51Registered Users
    Sunshinegrrl, I hope your sis can get pregnant. I'm wishing her all kinds of good vibes.

    My friend and his wife went through a lot of stress TTC. She has endometriosis and it was causing her a lot of problems. She was unable to get pregnant on her own, so they did IVF treatments. Now they have absolutely adorable twins, a boy and a girl. His daughter has got the most gorgeous dark auburn curls, too! So there is hope.
    2-3A mix
    Newly CG
    No faves yet
  • SunshineGrrlSunshineGrrl Posts: 3,823Registered Users Curl Neophyte
    We're all hoping she can get pregnant, too. She needs to lose a lot of weight first. They've done everything they can at her current weight. The doctor told her she needs to lose about 60-70 lbs before they will reapproach anything more. It's kind of a double insult because almost everybody around her is getting pregnant, including her cousin which she has a strained relationship with because of a Grandma comparing them constantly (it was a whoopsy, too). At least I'm not pregnant! I think she might strangle me!

  • spring factoryspring factory Posts: 5Registered Users
    nynaeve77: Oh, you give a girl hope! Well, maybe another girl. I don't personally want to have kids (can you say freaky? It's like having your body taken over by an alien!), but my sister does. She's got some freaky stuff going on, though. Has to shave more often than her husband (Not that there's anything wrong with that, just problematic for conception).

    So I'm new to NC.com. (sorry, I still can't figure out how to voice everything in my head in a short way)

    I first can't believe that I found so many threads about PCOS on this site, and to find someone who has it but also doesn't want kids! I felt like a total stranger that way. I can't tell you how many doctors seemed to discount my PCOS because I didn't want kids. Almost as if it didn't matter that I had it if fertility wasn't a factor. Diag around 32 then moved across country shortly after. Had already lost all the weight so I didn't "appear PCOS" and had a heck of a time finding a new doc. Had an ultrasound that didn't show any cysts, hormone levels were all normal, etc. But I was fanatical about keeping the weight off so I think that actually kept my "classic" symptoms at bay - not to mention I was always more atypical and didn't have the face hair and all. Had a vag ultrasound last year after strange cycles even on pill and there was the "pearl necklace" of cysts, plain as day. Finally back to a REAL diagnosis, and the d*** doc actually had the nerve to say, "oh, that's nothing"!!! Does it go w/o saying that she is no longer my doc?

    I've been battling this for 8 or 9 years now, with the weight and acne being the biggest struggles for me. Weight I've kept in control for the most part, but I fluctuate by 10 lbs like crazy and I have to diet all the time in order to just maintain. I can tell all of you still dealing with the weight issues that The Zone diet and something called a Candida diet made a HUGE difference for me. It's hard, but eliminating those bad carbs made things jump into gear like nothing else. When I fall off the diet wagon, things quickly get all wacky again.

    I also do a type of weight training called Russian Kettlebell training and it has made a big difference in my body. If this interests you and you're in the Denver area, PM me and I can refer you to my awesome trainer (group classes are affordable). If you're elsewhere, then I would recommend going to dragondoor.com and searching for a trainer in your area.

    Best wishes and good luck to all of you who are battling this in any way, shape or form. It's nice to know that there are others out there who truly get it, and on a curly hair site of all places!
  • SunshineGrrlSunshineGrrl Posts: 3,823Registered Users Curl Neophyte
    nynaeve77: Oh, you give a girl hope! Well, maybe another girl. I don't personally want to have kids (can you say freaky? It's like having your body taken over by an alien!), but my sister does. She's got some freaky stuff going on, though. Has to shave more often than her husband (Not that there's anything wrong with that, just problematic for conception).

    I first can't believe that I found so many threads about PCOS on this site, and to find someone who has it but also doesn't want kids! I felt like a total stranger that way.

    Hooray! Finally, someone who feels the same way I do! People treat me like I'm loony when I say I don't want kids.

  • spring factoryspring factory Posts: 5Registered Users
    Oh, I know. Like something must be seriously wrong with you. Even got me questioning whether something was wrong with me that I didn't want them.
  • SunshineGrrlSunshineGrrl Posts: 3,823Registered Users Curl Neophyte
    Oh, I know. Like something must be seriously wrong with you. Even got me questioning whether something was wrong with me that I didn't want them.

    Yup, been there. My sister treats me like I'm insane because she wants a baby so bad she can't handle it.

  • twoprincestwoprinces Posts: 29Registered Users
    I have PCOS too - I was displaying 9 of the 10 top symptoms but it still took 3 different doctors and a specialist over 6 years to diagnose me. Grr.

    One thing to consider: if you have any 'alien' hairs growing (like on your neck or chest ... dark brown, wiry ones) there's a huge chance you have PCOS. 98% of women with male pattern hair growth have PCOS.

    I had an ultrasound which showed the classic 'pearl necklace' patterning of cysts on my ovaries. I was also getting cysts in my breasts (found during routine breast examinations) and one on my neck. I have 2 on my scalp which won't go away (the others all disappear over time). The scalp ones are small, so it's not too much of a problem.

    After the ultrasound I had a glucose tolerance test to check for insulin resistance. Has your doctor discussed this test with you? I also had a hormone count done.

    The usual treatment is diet (low GI or South Beach) and regular, moderate exercise. The combination is more effective than any medication. PCOS can't be cured, but the symptoms can be treated. The risks of type 2 diabetes can be helped with metformin, but it is a really hard drug on your GI tract. If you're overweight, losing 5-10% of your bodyweight can sometimes get rid of the PCOS symptoms. Only 60% of women with PCOS are overweight though.

    I had straight hair until I started having PCOS symptoms, so I think my wavy hair is hormone related.

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