update #63: Ok, so apparently...
VTmom
Posts: 2,487Registered Users Curl Connoisseur
....I have breast cancer 
So much for the bad news....no worries please. I'm just pissed that it's ruining my summer. As a teacher, I live for my summers
I did just get a week at the beach though with the hubs and adult children, so that made life good :glasses7:
This is what I know so far: I have IDC, the most common kind of breast cancer. I have a grade 3 tumor that measured over 2 cm at time of biopsy. I tested positive for all hormone receptors (estrogen, progesterone and the protein HER2). I will definitely be getting chemo, regardless of lymph node involvement which won't be determined until after surgery, scheduled for July 8. I'm getting a port during surgery and will have immediate reconstruction. I will be on herceptin for a year due to HER2 status.
For any curlies out there who have been thru this, I have these questions:
1. I know that I will be losing my hair. However, in the meantime, I'm a shave-every-day kinda girl. I've been told not to use a straight razor for fear the smallest nick could possibly cause lymphodema. I've bought an electric razor, but haven't opened it yet. I've also bought veet sensitive. Any recs on what works well?
2. Drains....UGH UGH UGH!! I'm dreaaaaadddding them!! ...probably as much as anything at this point. I watched a good video on youtube, and someone suggested in the comments to get one of those cloth nail aprons from home depot to hold them while showering, so I picked up a couple yesterday...they were only 77cents! Any other good ideas or suggestions for drains, PLEASE share
3. How long before you were able to get out and about comfortably?
4. How long before you could work out? My exercise of choice is running, but even that is a continual struggle due to my chronic plantar fasciitis. However, I've been continuing to run and work out in hopes I can be in my best possible shape before surgery.
5. Anything else you think I'd find helpful, I would welcome. I'm pretty sure more questions will be forthcoming.
If you're still reading....thanks
Now, for the good news....just call me grandma (for the 1st time) :occasion9:
So much for the bad news....no worries please. I'm just pissed that it's ruining my summer. As a teacher, I live for my summers
I did just get a week at the beach though with the hubs and adult children, so that made life good :glasses7:This is what I know so far: I have IDC, the most common kind of breast cancer. I have a grade 3 tumor that measured over 2 cm at time of biopsy. I tested positive for all hormone receptors (estrogen, progesterone and the protein HER2). I will definitely be getting chemo, regardless of lymph node involvement which won't be determined until after surgery, scheduled for July 8. I'm getting a port during surgery and will have immediate reconstruction. I will be on herceptin for a year due to HER2 status.
For any curlies out there who have been thru this, I have these questions:
1. I know that I will be losing my hair. However, in the meantime, I'm a shave-every-day kinda girl. I've been told not to use a straight razor for fear the smallest nick could possibly cause lymphodema. I've bought an electric razor, but haven't opened it yet. I've also bought veet sensitive. Any recs on what works well?
2. Drains....UGH UGH UGH!! I'm dreaaaaadddding them!! ...probably as much as anything at this point. I watched a good video on youtube, and someone suggested in the comments to get one of those cloth nail aprons from home depot to hold them while showering, so I picked up a couple yesterday...they were only 77cents! Any other good ideas or suggestions for drains, PLEASE share
3. How long before you were able to get out and about comfortably?
4. How long before you could work out? My exercise of choice is running, but even that is a continual struggle due to my chronic plantar fasciitis. However, I've been continuing to run and work out in hopes I can be in my best possible shape before surgery.
5. Anything else you think I'd find helpful, I would welcome. I'm pretty sure more questions will be forthcoming.
If you're still reading....thanks
Now, for the good news....just call me grandma (for the 1st time) :occasion9:
The smallest deed is greater than the grandest intention.
I am the master of my fate: I am the captain of my soul. (Invictus - William Ernest Henley)
Just think I used to worry 'bout things like that,
Used to worry 'bout rich and skinny, 'til I wound up poor and fat,
Nowadays I kind of worry where my mind's been at,
Just think I used to worry 'bout things like that. (Delbert McClinton - I Used to Worry from Never Been Rocked Enough)
I am the master of my fate: I am the captain of my soul. (Invictus - William Ernest Henley)
Just think I used to worry 'bout things like that,
Used to worry 'bout rich and skinny, 'til I wound up poor and fat,
Nowadays I kind of worry where my mind's been at,
Just think I used to worry 'bout things like that. (Delbert McClinton - I Used to Worry from Never Been Rocked Enough)
0
Comments
Congrats on being a grandma! You are leaving by my mantra! look on the brightside. That's what keeps us going if when the crap really hits the fan. Keep us updated on your progress and know that we are here for you.
My british name, courtesy of Ninja Dog Shade Haven-Staffordshire: TRBL Hough Jewelstone Turtleneck
Its chaos a few hairs at a time. ~Minxy
"Dispute not with her: she is lunatic." -Richard III
We are here for you VTmom.... or should we now say VTgrandma?
Congratulations on the grandbaby!
Mix of 3s, thick, coarse, medium porosity
Current hair styling technique: rake with a scrunch at the end. (works with my coarse hair)
http://public.fotki.com/curlymix/
pw: curls
Known HGs: KCCC, homemade fsg, honey
Three of my sisters have had breast cancer of varying degrees of severity. One sister had a lumpectomy about three weeks ago and is getting ready to start radiation next week. Her tumor looked to be 1.5 cm before surgery but was actually 3 cm. She just got the results from her ONCA test and she's in the low range for recurrence so she doesn't need chemo. She was back to work in 2.5 weeks.
Another sister had stage 3 breast cancer (lymph node involvement) and grade 3/4 tumors in both breasts. She had a double mastectomy in December 2011, followed by chemo then radiation. She is also a teacher. At the time she got her diagnosis, she was running and walking regularly and training for her second half marathon. She had her surgery after school got out for Christmas break and finished treatment seven months later.
She couldn't work while she had chemo so she didn't go back to work until fall 2012. She was teaching first grade at the time and it was simply too physical for her. Her oncologist was also worried about all those germy kids so he was opposed to her working at all. I think if she had a desk job with adults, she might have been able to work part time during chemo (i.e. no work on chemo weeks and partial days during the non-chemo weeks) but it would have been 4-6 weeks after surgery that she would have been able to go back. (Your doctor can tell you how long. It has to do with when you stop pain meds and how soon you have mobility in your arms to drive.)
The drains were a pain. She had a couple tank tops with little pockets to hold the drains. Showering, she just did the best she could. She definitely didn't shower every day because changing the dressings was hard. Since you're married, you might want your husband to give you showers at first. I personally wouldn't worry about shaving my legs. You'll need help with that at first anyway because you probably won't be flexible enough to do it yourself.
Good luck with everything. I think the most important thing to know is that everyone is different. Some people have a really hard time and others go about their lives with no problems at all. Just remember to listen to your body and don't do more than you can handle.
Don't have any answers for you, but you are in my thoughts and prayers.
Every person has a unique connection to the Creator that can never be extinguished, and every person has a great soul that can manifest important things in our world. To make a person feel less than they are because of something inside themselves, be it faith, race, or sexual orientation, is the greatest sin of all."
http://labellatestarossa.blogspot.ca/
Little Mother of all the Roaches, President-for-Life of the MAC Harlots!
I had drains following an abdominoplasty and I wore a work ID badge neck lanyard thing around my neck in the shower and either clipped the drains onto the lanyard or hung them from the lanyard. If clips were involved, then the dr's office provided them for me bc I wouldn't have thought to go buy something like that. I just tried to stand as still as possible while washing and they always remained in place, even when they were heavy and full.
First of all, I'm so sorry about your sisters. I'm sure that was very hard for your family. How are they all doing now? I'm fairly certain I won't be back at the beginning of the year. My chemo starts the 2nd week of August and won't be over until around Christmas. So I'm thinking if all goes well, I'll go back 2nd semester. I work in a PreK-grade 3 school and have totally thought about the snotty little munchkins...not a good combo for a depressed immune system
As to the 2nd bolded, I'm most worried about my underarms! :shock: I can't imagine having hairy underarms. I really just can't imagine it. You see, these are the trivial things I'm thinking about....silly, huh?? :tongue10:
I am the master of my fate: I am the captain of my soul. (Invictus - William Ernest Henley)
Just think I used to worry 'bout things like that,
Used to worry 'bout rich and skinny, 'til I wound up poor and fat,
Nowadays I kind of worry where my mind's been at,
Just think I used to worry 'bout things like that. (Delbert McClinton - I Used to Worry from Never Been Rocked Enough)
And congratulations grandma!
Sent from my SCH-I535 using CurlTalk App
That sounds like a good plan for when to go back to school. I'm glad you don't need to worry about it and can just focus on you.
I didn't even think of underarms! I don't have any hair on mine so I forget other people do. I could be wrong, but I don't think you'll want to shave much after surgery. It's awfully close to your incisions and you most likely will be numb in that area--at least my sister is. Johns Hopkins says to use an electric razor if you must shave.
I am the new Black.
"Hope the Mail are saving space tomorrow for Samantha Brick's reaction piece on the reactions to her piece about the reactions to her piece." ~ Tweet reposted by Rou.
Last relaxer: Not sure. 3/08 or 4/08
BC'd: 9/18/09
Co-wash: Suave Naturals, HEHH, Trader Joe's Tea Tree Tingle, CJ Daily Fix
Leave-In: KCKT, Giovanni Direct Leave-In, CJ Smoothing Lotion
Stylers: ORS Twist and Loc Gel, KCCC, Ecostyler, SheaMoisture Deep Treatment Masque
Deep Conditioner: DevaCurl Heaven In Hair, CJ Deep Fix
http://confessionsofladyv69.wordpress.com/
Shinymama.com 2013 March » Page: 1 | Shinymama.com
I had a drain in my head after brain tumor and a port in my stomach, so I know a little of what you are facing. Some of the things we fear most don't turn out to be so bad. I hope that's the case for you.
Please post here often; we really do care about you.
Highly porous. Color over grey.
I love all the Curl Junkie products. Still experimenting with gels and curl creams. Still hoping for 2nd day hair....
Every day is a gift :flower:
And many congrats on becoming a grandma - is it a girl or boy grandbaby?
I am the master of my fate: I am the captain of my soul. (Invictus - William Ernest Henley)
Just think I used to worry 'bout things like that,
Used to worry 'bout rich and skinny, 'til I wound up poor and fat,
Nowadays I kind of worry where my mind's been at,
Just think I used to worry 'bout things like that. (Delbert McClinton - I Used to Worry from Never Been Rocked Enough)
Sent from my HTCEVOV4G using CurlTalk App
HG: Jessicurl Too Shea and Kinky Curly Curling Custard
Shampoo: nonsulfate shampoo and Suave Naturals sulfate shampoo when needed
And congrats on the grandbun in the oven
Congratulations on the little one due to arrive, that is really wonderful.
Mostly waves, but curls and straight bits too!
Fine to medium, high porosity, medium density, very low elasticity
Highlights damage (growing it out), seems to like protein and need lots of moisture.
Cleanse - CJDF, trying out low poos ; Co wash- Uk chemist brands, Urtekram Rose or Aloe, Hairveda Amala Cream Rinse; RO - varies, Tigi Moisture Maniac, Desert Essence Coconut ; Leave in - Keracare natural textures; Sealant - argan oil
Trying out new things, still looking.
I was diagnosed with breast cancer in Dec 2011, and also had bilateral mastectomy with immediate reconstruction. My cancer was caught by the wildest fluke, and therefore so early that I needed neither radiation nor chemo.
However, I did go through the surgeries (including a salpingo-oophorectomy).
I realize that my post surgical treatment was different from yours, so I can only comment on the surgical aspect, but I wanted to share with you that I found the entire experience very non-traumatic and very doable.
Do not dread the drains. The idea of the drains (and everything else) is much worse than it turns out to be as you're going through it.
Please feel free to PM me at any time, especially if you would like to chat about post-surgical care tips to make things easier on yourself.
Whatever happens, you can (and will) handle it.
Rebecca
sent from phone
Rebecca, I was so glad to read that your experience with drains was not as bad as you expected. That allays my fears a bit...
I am the master of my fate: I am the captain of my soul. (Invictus - William Ernest Henley)
Just think I used to worry 'bout things like that,
Used to worry 'bout rich and skinny, 'til I wound up poor and fat,
Nowadays I kind of worry where my mind's been at,
Just think I used to worry 'bout things like that. (Delbert McClinton - I Used to Worry from Never Been Rocked Enough)
Sent from my SCH-I605 using CurlTalk App
My curls looks like the 3a pictures
Hair length is to my bra strap, it's fine textured, but the density is thick, not much elasticity, Naturally Blonde but Color treated because of graying going on
My hair loves
coconut oil
Homemade FSG
Hair one for my co wash
Ecostyler olive oil
Princess Brandy Brat, Chief Jewel Crafter and Royal Nanny to the Court of the Red and White Rose for the Order of the Curly Crusaders.