Update on our unexpected surprise!

SpiderSpider Posts: 3,381Registered Users Curl Neophyte
Thanks CGE for posting!- I lost the brief connection that I had in the hosp after I had written a couple of paragraphs and wasn't sure if it went through or not.

Long and short is I'm doing very well, baby Drew is critical but stable. He was born Monday night by emergency csection weighing 5 lbs, 2 oz, and 17.25 inches (at 32 weeks)

After a weekend of swelling in my upper legs and pink discharge monday morning I called my OB ( he wanted another US scheduled for yesterday). The only way to get it done was through L& D at the hosp so I went up there and then DH and his parents joined us. The preliminary US showed I did have excess amnio fluid (not a big deal in itself I guess) but the bigger concern was that baby had fluid around ( but not in) his lung cavity. The maternal fetal specialist that I saw initially came back by, did her own US and confirmed it. The cause and seriousness was not really known, though she did say his heart and activity looked good.

At that point there was discussion of me possibly having fluid drawn off, but being admitted to the hospital until delivery ( as far out as possible) . They didn't want me going into labor out and about but the longer I could keep in him the better ( PS I had been in preterm labor for some time, those back spasms weren't always my back :? )

Then the decision was made that I should be moved to another hospital that has a top-rate pediatric hospital on campus, so that if they did do an amnio he could be attended to by specialist immediately. We also had a winter storm/blizzard warning on the way, and I think they were worried about that. They transported me by ambulance to the other hospital, where I was then given the high- detail US, the 4 D kind because again they were wanting to make sure his heart wasn't an issue. I was then admitted and taken to the L&D of this hospital and put into an LDRP room, where we were basically waiting for the word to put me on Magnesium Sulfate to stop my contractions ( they also checked me here and I was dialated to 2cm, and the contractions were the same as what I'd been having, but more uncomfortable because I was on my back so much for the Ultrasounds. )

Earlier fetal monitoring didn't cause concern but by this time, the baby's heart rate would be normal ( around 130 beats per min) then drop really low (I thought it was my HB) to around 55-60 pbm. There were 3 specialists in the room along with serveral nurses, my DD,DH and his parents. As soon as the heart rate dropped, they told me they were going to have to do a c section, because the baby was very sick and in distress. It was so surreal- they didn't even have time to do a spinal block/epi but said they would have to put me under general anesthesia because it was so urgent.

I'd been pretty calm and strong to this point but then I got really scared, and my daughter was upset, and I got upset- I just wanted to comfort her and yet I had go for the baby. In about 5 minutes I was wheeled off to surgery, given something to drink for heartburn, my jewelry's taken on, a hairnet's going on, the catheter is going in... and I was just so scared and shaking but the staff kept talking to me and reassuring me.

When I woke they told me the baby was stablized, his size... and that they had tubes in his chest to drain out the fluid, as well as him being on a ventilator. Everyone else had seen him while I was still in recovery, but they wheeled the little isolette back in so I could see him. He was very red, and has blond hair, but other than the tubes and vent and being a bit small, he is perfect!

The condition he was initally diagnosed with is called hydrops (sp). I haven't had a chance yet to look anything up on it. The causes could be congenital heart problem, lympatic draining system issue or a viral infection. From what everyone has said, the baby looks and is reacting much better to most diagnosed with that condition, and the chance that it is his heart is pretty much ruled out. So now we're waiting on test results for the other to come back. They also told us sometimes a cause is never found. Treatments could be as mininal as him out growing it, needing medication or possibly shunts/stints to direct the fluid to his belly. Not sure what long term issues could be, again we're taking it one day at a time.

Everyone's thoughts and prayers for us have helped so much and continue to give us hope and comfort that he's going to be okay. He's producing urine, passed some meconium and continues to wean down the need for the respirator. They also told me before I left today that they would start giving him my milk, which I was very glad to hear. It will have to be by IV first and then after his sucking reflex is established it will be given by mouth. We still can't hold him, or really touch him much other than the top of the head and hold the bottom of his feet. His central line is through his umbilcal, so it's very criitcal for him not to be moved, lifted or jostled.

I'll keep you posted...

Hugs and thanks to all and keep sending those powerful prayers and vibes!!
Don't let your heart be broken. Let it love.
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Comments

  • three rivers curlythree rivers curly Posts: 994Registered Users
    I am sooo happy to hear from you! Thank goodness Drew was as big as he was - it will definately help. What a strong little man. Many hugs and good vibes coming your way. Take care of yourselves!
    Better everyone think your a fool, than to open your mouth and prove them right.

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  • marielle448marielle448 Posts: 1,823Registered Users
    great to hear about you and the baby doing much better.
  • fuzzbucketfuzzbucket Posts: 996Registered Users Curl Connoisseur
    Wow! Sending out all my thoughts and best wishes to you and your family!
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  • WileE-DeadWileE-Dead Banned Posts: 24,963Banned Users Curl Neophyte
    Wow...
    Great news! :)
    0004.gif

    Ever since the sports thread wars I have sensed a special connection between [edit] & Wile. Like the connection oil has to water. I almost can't speak of it. Wait....my eyes are misting. ~asq
    Let’s just stay together and tell the world to kiss our ass. ~P


  • medussamedussa Posts: 12,993Registered Users
    Hugs to you, Spider. You and your family have been through a lot in just a few days. Will continue to keep you all in my prayers.

    Welcome to the world baby Drew!
  • SystemSystem Posts: 39,060 Administrator
    take care. I'm thinking of you and your family.
  • mazeymazey Posts: 709Registered Users
    Take care and I am keeping you all in my thoughts!
    Madonna getting upset with her daughter for dressing too slutty is like Mr. T getting upset with his son for pitying too many fools.
  • HairproductjunkieHairproductjunkie Posts: 363Registered Users
    Congratulations Spider and Baby Drew!!

    I'll continue to keep you in my thoughts and prayers.
    GuardianB wrote:
    Southern gals rock :!:
  • M2LRM2LR Posts: 8,630Registered Users Curl Connoisseur
    Thank you so much for the update!!!

    Many thoughts and hugs going out to you guys!
    :rambo:
  • geekygeeky Posts: 4,995Registered Users
    Take care, Spider! Your family will be in my thoughts.
    To Trenell, MizKerri and geeky:
    I pray none of you ever has to live in a communist state.

    Geeky is my hero. She's the true badass. The badass who doesn't even need to be a badass. There aren't enough O's in cool to describe her.
  • MunchyMunchy Posts: 5,206Registered Users Curl Novice
    Thoughts and prayers to you and your family. He sounds like a trooper already!
  • DayzieDayzie Posts: 233Registered Users
    Still sending T's and P's your way Spider. Thanks for the update, and keep us posted on how everything is going.

    Oh and, WELCOME BABY DREW!
    "You don't stop laughing because you grow old. You grow old because you stop laughing."

    "There is so much good in the worst of us and so much bad in the best of us, it hardly behooves any of us to talk about the rest of us."
  • AmnerisAmneris Posts: 15,117Registered Users
    Wishing you, baby and the rest of the family a speedy recovery.
    Get used to me. Black, confident, cocky; my name, not yours; my religion, not yours; my goals, my own; get used to me. -Muhammad Ali


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  • internetchickinternetchick Posts: 6,191Registered Users
    Glad to hear an update, best wishes for you and your lil' guy.
  • inheritedcurlsinheritedcurls Posts: 2,954Registered Users Curl Connoisseur
    Oh My!! Thank you for letting us know how you and Drew were doing.

    My family will be thinking of yours and wishing you both a speedy recovery.
  • SpiderSpider Posts: 3,381Registered Users Curl Neophyte
    The baby is doing very well. The initial diagnosis of fetal hydrops seems to be incorrect- and many nurses and doctors have reassured us that they aren't really looking at that condition now. I found out after I got home and on line how horrible that situation is, most infants don't survive birth and don't have long to live for those that do. ( don't look for the case picture on the internet - I warned you!) For now unless some tests results reveal what it is, they are treating him for the fluid on his left side, but basically as a stable preemie infant.

    He looks like a normal, albeit premature baby. At 5 pounds 2 oz, he was a good size for being delivered at 32 weeks. His right chest tube was to be removed today, and starting yesterday they took him off the forced ventilator, and he just has a Cpap ( the oxygen tube that goes in your nose) which he keeps pulling off- so basically he is breathing on his own. He also started getting milk through a feeding tube that goes into his tummy; he won't have a strong enough suck reflex for a couple of weeks yet to manage handling breathing, swallowing and food at the same time. Once that's better though, he'll be able to be bottlefed or better yet nursed.

    He's been awake and active many of the times we've seen him. Of course there's a lot to check, flush, retape, poke, diaper changing... so the little guy is not always happy. We heard him cry for the first time today since they extubated him yesterday- that was such a hopeful and encouraging (and beautful!) sound. Now if I feel that way in a few months.... :)

    He definately looks like his dad, and has a fuzz of white blond hair

    No word yet on the next steps, though the nurse said today he would probably be move to the regular care unit and out of critical care nusery .We are doing well, I'm healing and the swelling in my legs is getting better. The emergency c-section was a very scary experience, but the staff at have been so calming and caring that it's made all the difference in this experience.

    DD has been such a trooper at home, and helping me, and she can't wait to see her little brother again. ( because of RSV dangers, no kids under 18 are allowed in the NICU) No doubt she will be an amazing big sister when DS comes home.
    Don't let your heart be broken. Let it love.
  • medussamedussa Posts: 12,993Registered Users
    Great news, Spider. I'm so relieved it isn't hydrops. When you posted that yesterday, I just couldn't bring myself to say anything. But you are so right, it is a scary condition.

    Continued wishes for a speedy recovery for you both.
  • geekygeeky Posts: 4,995Registered Users
    That's great news!
    To Trenell, MizKerri and geeky:
    I pray none of you ever has to live in a communist state.

    Geeky is my hero. She's the true badass. The badass who doesn't even need to be a badass. There aren't enough O's in cool to describe her.
  • WileE-DeadWileE-Dead Banned Posts: 24,963Banned Users Curl Neophyte
    Great news! :)
    Try to take it easy so you can heal well...
    0004.gif

    Ever since the sports thread wars I have sensed a special connection between [edit] & Wile. Like the connection oil has to water. I almost can't speak of it. Wait....my eyes are misting. ~asq
    Let’s just stay together and tell the world to kiss our ass. ~P


  • CGECGE Posts: 1,911Registered Users
    Yay!! That's great news!
    I used to have a signature but it disappeared and I just couldn't be bothered writing another so please feel free to ingore this.
  • SpiderSpider Posts: 3,381Registered Users Curl Neophyte
    medussa wrote:
    Great news, Spider. I'm so relieved it isn't hydrops. When you posted that yesterday, I just couldn't bring myself to say anything. But you are so right, it is a scary condition.

    Continued wishes for a speedy recovery for you both.

    Yes after I researched it I was completely freaked out and upset.
    Don't let your heart be broken. Let it love.
  • iris427iris427 Posts: 6,002Registered Users
    Spider, glad to hear things aren't as serious as they thought. I hope baby Drew has a speedy recovery!
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  • ShrekLoverShrekLover Posts: 2,551Registered Users Curl Neophyte
    Great news, very I'm very happy for you and your family.
  • itsjustmeghanitsjustmeghan Posts: 652Registered Users
    congrats, spider! i'm so happy for you and yours! all this lovin will get drew ready to come home fast! <3<3<3
    3A Once again on the quest for BSL healthy curly hair....
  • picklesgirlpicklesgirl Posts: 1,955Registered Users
    yay!!! I'm so glad you've been getting such great news.
  • PixieCurlPixieCurl Posts: 5,656Registered Users
    Congrats Spider! You and baby Drew will continue to be in my thoughts :)
    Faith, 3Aish redhead
    Mama to two wild superheroes and a curly-headed baby boy :love5:
  • deedlesdeedles Posts: 2,467Registered Users Curl Connoisseur
    PIXIE!!! I just saw you!! YEAH FOR YOU!!! WOO HOO!!! It's gonna be a redhead!!!

    ~d
    Liam: 6 years old
    Colin: 3 years old
    Location: Williamsburg, Virginia
    Member Since: August 2000
  • SpiderSpider Posts: 3,381Registered Users Curl Neophyte
    We got to hold him today for the first time since he was born. DH held the syringe with the milk in it (still going into a tube in his tummy) while I rocked and held him. He was soooo content and slept the whole time. His feedings are up from 6ml yesterday (first time for breast milk) to 17ml per feeding today ( every 2 hours) He's taking it well and not having any digestion issues.

    His bili levels required him to be on a light blanket, so he looked like a little glow worm. Not only that but he had these purple foam goggles on to protect his eyes, so he looked like he was in a tanning bed 8)
    Don't let your heart be broken. Let it love.
  • MarMar Posts: 3,004Registered Users Curl Neophyte
    I am glad to hear he's doing well-big hugs to you both!
    "what's so funny 'bout peace, love and understanding?"



    "If you judge people,you have no time to love them"
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  • inheritedcurlsinheritedcurls Posts: 2,954Registered Users Curl Connoisseur
    Yeah!!! I'm so glad to hear the great news Spider!!!

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