CurlTalk

Does anyone have PCOS?

I was formally diagnosed a couple years ago and it never occurred to me that it could be the cause to my hair loss. My hair's been falling out A LOT over the past year and I couldn't figure out why. I haven't been treated for it yet, but was wondering if there were any dietary changes I could make for the time being to help my hair grow.

Comments

  • coracora Posts: 456Registered Users
    Hi, you may want to check out the Insulin Resistance Diet (along with excersise) . It has helped some folks manage their PCOS. Spironolactone seems to have helped some with hair loss so you probably want to talk to a doctor--also get your vitamin d levels checked.
  • mamaherreramamaherrera Posts: 884Registered Users
    I have PCOS and I have had high shedding for three years. Don't know what else to do. I have tried the diet, but it's hard. I am on spironolactone, it helped my face, but never noticed a difference in my hair. I never did do the max. dose of 200 mg, too scared. Very frustrating problem.
    2c
    Medium texture
    Normal porosity
    Normal elasticity
    can get weighed down with lots of oils
    Co-wash-trying giovanni wellness
    Rinse out: Garnier Body Boost, GVP
    Leave-in: none right now, maybe a touch of SM curling souffle
    Curl enhancer: AOMM and KCCC
    Gel: Kiss my face gel
    DT:Jessicurl
    Low Poo: abba pure and natural, Giovanni Wellness
    working on: getting rid of frizz from the get-go
  • aerisleyaerisley Posts: 23Registered Users
    I have PCOS/Insulin Resistance, but I haven't experienced shedding. What I have experienced is dermatitis from Metformin. As soon as I quit taking it, my scalp cleared up. Spiro definitely helped my acne, and I notice if I have to go too long without it.
  • crazycurlyhaircrazycurlyhair Posts: 14Registered Users
    I was diagnosed with PCOS in early 2011. I was losing hair like crazy.
    I read somewhere that vitamin E is supposed to help balance your hormones so I decided to give it a try, since elevated DHEA levels were the cause.
    I can't say for sure it worked because for all I know it's a miracle... but I lose a normal amount of hair now. My other symptoms seem to have gone away as well (acne, plus I didn't get my period for an entire year and now they come every month)
    Maybe I'm just lucky, but it doesn't hurt to try. I never made any dietary changes because I'm a junk food addict and I just can't give it up.

    I also heard turmeric tea was good for PCOS. I tried but didn't stick to it, mostly because I'm pretty fickle.
  • mamaherreramamaherrera Posts: 884Registered Users
    Gosh that sounds great. How much vitamin E do you take and do you continue to take it on a regular basis?? I already get some in my multi which is why I would like to know how much you take.
    2c
    Medium texture
    Normal porosity
    Normal elasticity
    can get weighed down with lots of oils
    Co-wash-trying giovanni wellness
    Rinse out: Garnier Body Boost, GVP
    Leave-in: none right now, maybe a touch of SM curling souffle
    Curl enhancer: AOMM and KCCC
    Gel: Kiss my face gel
    DT:Jessicurl
    Low Poo: abba pure and natural, Giovanni Wellness
    working on: getting rid of frizz from the get-go
  • crimsonshedemoncrimsonshedemon Posts: 2,098Registered Users
    Magnesium (use a quality form like mag malate or mag glycinate) is helpful in pcos too. It'll make you more insulin sensitive among others
  • mell_152mell_152 Posts: 90Registered Users
    hmmm...I didn't realize that PCOS caused hair loss. I haven't been diagnosed with PCOS, but I kinda have assumed I have it...I fit all of the symptoms (acne, extra weight around the belly, weird hair growth, infertility, and i've had cysts on my ovaries) except I have regular cycles and when i checked my temp, I always have obvious ovulation....but I DO have infertility (18mths to get preg with #1, and 4yrs and counting trying for #2).....and my hair falls out A LOT in the shower!!! i run my hands through my hair and clumps come out. I've given up on another baby, but if I go get diagnosed with PCOS and go on medication, will it help with other symptoms?
    Just starting CG (04/18/13)
    2C/3A hair, medium texture, normal porosity (I think!)
    Trying out: Suave Naturals wild strawberry (co-wash) Garnier Fructis Pure and Clean fortifying conditioner, Redken crystal curls 6, Live Clean Argan Oil Treatment, Pantene curl shaping gel
    Thinking of trying: Live Clean Argan oil conditioner or Live Clean Bali Oil conditioner....who recommends them?
  • EmsmommyEmsmommy Posts: 1Registered Users
    My 13-year-old daughter has PCOS (yes, really) and is just on low-dose birth control pills, and her previously straight, thin hair has gone curly. She has a short cut and we are trying to figure out how to manage it. Just had to get a redo haircut yesterday as her stylist cut it the usual way and it looked awful. Poor kid, as if that age isn't hard enough and then this. Hormones do such strange things!:geek:
  • PyjamaLlamaPyjamaLlama Posts: 72Registered Users
    I'm so sorry for her!! Bad haircuts really do make you really self conscious (speaking as a teen who has had some pretty bad haircuts)
    For her hair, is growing it out possible? Even if just to chin length and shaped right, curly bobs are awesome. Is it possible for you to get to a curly stylist? Or a stylist who knows stuff about curly hair? A good cut will seriously boost her confidence, which can only be a good thing.
    In the mean time, try using pretty clips and headbands to accessorise, and look round this site for curly hair info. A diffuser is probably worth investing in, and some gel or mousse. Is she following the curly girl method? Following it (cutting out harmful sulfates and silicones from hair products and stopping dry brushing) will make her hair healthier, and some people find it makes their hair grow quicker.
    Good luck with the PCOS!! :)
  • DaniGirl88DaniGirl88 Posts: 1,583Registered Users
    I have been told I have PCOS as well, but really haven't had any of the major side effects except weight gain and irregular cycles. I was put on birth control to help protect my ovaries and just recently had surgery to remove one of my ovaries due to a large dermoid cyst. I don't have any cysts anymore though, as my left ovary is clear. I was hoping the other cyst was the problem and that I would start losing weight and feeling better, but no such luck. I think my biggest problem is that I feel tired a lot. Not so much anymore, but before I was really lethargic. Has this happened to anyone else? Right after surgery, I noticed major hair loss. I am still losing some hair, but not nearly as much.
    [SIGPIC][/SIGPIC]

    3B, fine, normal porosity, high density, medium width and length
    Conditioner: Tresemme Naturals, Trader Joe's Tea Tree Tingle
    Co-Wash: As I Am Coconut Co-Wash
    Leave in Products: As I Am Leave-In, SM Smoothie/Milk, KCKT, Giovanni Direct Leave-In
    Air Dry

    Looking for new products and methods to try!



  • cocodominicanacocodominicana Posts: 2Registered Users
    I have PCOS and I've just started on Metformin two months ago. Everyone's symptoms are different, but I never experienced hair loss. Just the acne, belly fat and awkward hair growth. I've also changed my diet (clean eating) and exercise 5x a week. I've noticed that has helped alleviate some of the symptoms and I've dropped 20 lbs since August.

    Really, your best bet is to change your eating habits (avoid foods high in sugar, carbs and starches) and do some form of exercise to drop weight. It'll help immensely.
  • MidwesterncurlMidwesterncurl Posts: 133Registered Users
    I've had to make major dietary changes, and need to lose more weight. I couldn't stand the birth control and I'd rather just get more fit to manage my symptoms.

    My hair has definitely changed-- in texture, growth pattern, and even my hairline! Sadly, my hairline where my forehead is has gotten slightly thinner, but I have icky hairiness near the nape of my neck :\
  • GlamourCurlsGlamourCurls Posts: 194Registered Users
    Another PCOS sufferer here 😟

    I lost 20kg through exercise and clean eating. Before that my cycle was all over the place, no periods for years, then 10 weeks of constant bleeding and actually hemmorraged (sp?) twice and needing to go to the ER.

    No insulin resistance but my hormones are within normal levels. Once I got the weight off and quit sugar and bad carbs, the weight fell off and my cycle became almost normal
    Fine 3B/C curls.
    Currently growing out damage caused by straightening and coloring.
  • OnduleeOndulee Posts: 1,264Registered Users
    I've had PCOS for 20 years. I've suffered the weight gain, the cystic acne, the massive hair loss. Long story short, I've recently started getting a handle on this issue by going at it in a 3 pronged fashion.

    Stress reduction:

    I've eliminated caffeine(all) for 1.5 yrs, I take large doses of magnesium (Natural Calm) nightly (reduces cortisol-the stress hormone), take potassium as well. I take 2 tsp of sea salt dissolved in warm water daily as the sodium chloride is vital for the body. My blood pressure has improved believe it or not. Once or twice a week I drink powerade zero to make sure I'm not dehydrated. I'm sure there are other things I'm doing but can't remember at the moment.

    Estrogen dominance reduction:

    I know that probably if you have PCOS you may have been told of the evils of Soy Isoflavones increasing estrogen levels. Well I didn't listen and my facial hair growth(chin and sideburns) are all reducing dramatically when I take a high absorbtion soy isoflavone supplement and 50 gr of soy protein shake(Optimum Nutrition 2 scoops)per day. My skin is much less oily and has a better skintone, not so greyish and washed out.

    Other Horomone balancing:

    Currently taking 50 mg pregnenolone(in a lipid matrix) to balance the Ovarian/Adrenal(stress)/Thyroid axis hormones. I am also using 50 mg of Iodoral for getting my iodine. The sea salt drink mentioned above also helps flush out bromide from the tissues. Bromide, chlorine, flouride all compete and push out iodine which is why most people are deficient in iodine. I take 5-6000 mg of Vitamin C as well to help with unpleasant bromide detox symptoms.

    I de-chlorinate my water by sprinkling about 1/32 of a tsp of Vitamin C powder into my drinking water. This immediately neutralizes chlorine in tap water. If you don't want to do that, leave a large jug of water uncovered overnight and the chlorine will dissipate into the air over about 8 hours.

    I neutralize the fluoride in my drinking water by mixing about 1/16 tsp of Borax(yes 20 Mule team borax) into my drinking water and letting it dissolve.
    Since I have been adding the C and the Borax to my drinking water, the salt flush has pushe out a lot of bromide. You can tell when your urine is very very cloudy. I know when a bromide dump is going to occur because I get super super sleepy with bad lower back and leg pain for a day or so, then I pee and with super cloudy urine(bromide) my back and leg pain are gone for several days until the next dump.

    I think this routine will take me some time to see the end of the tunnel but take heart ladies, my hair is growing back and my left eyebrow which the outside half had almost disappeared is also growing back.

    I'm almost 45 and am in more control of my PCOS than I ever have been before. So there is hope. Please do your research on all the things I've mentioned, I did my own research and decided to self-navigate through this without prescription meds. You need to do whatever will work best for you so read read read and read some more to educate yourself on all the options I mentioned.

    Hope this helps someone.
    shoulder length inverted bob; fine; 3A-3B; med-thick density; normal porosity; normal elasticity- my hair loves keratin, ACV, silk protein ,Curlkeeper and AG:Recoil ; seems to hate moisturizing products and oils except mineral oil; CG- Jan/'09-mod CG Sept/'09;CG again Jan/'10/mod CG from Mar'10

    receive $10 off 1st order of $40 & up, or $5 off on smaller orders, when using iHERB code: GIK909
  • sfaithjsfaithj Posts: 106Registered Users
    I was formally diagnosed a couple years ago and it never occurred to me that it could be the cause to my hair loss. My hair's been falling out A LOT over the past year and I couldn't figure out why. I haven't been treated for it yet, but was wondering if there were any dietary changes I could make for the time being to help my hair grow.

    i was recently diagnosed with PCOS. my hair has also been thinning. i used to have beautiful, thick, wavy hair. anyway, i'm on several supplements for my PCOS:

    1. herbal tinctures of chaste tre, dandelion root, false unicorn, golden seal, licorice, white peonie, nettle and red clover
    2. 1 tab of d-chiro inositol twice daily
    3. tribulus on days 5-14 of my period. one tab during those times.

    I'm also taking iodine to help with my ovarian cysts and my hypothyroidism.

    As for diet, I'm trying to avoid caffeine (that contributes to cysts). I was already vegan before I was diagnosed so I'm sticking with that diet, except limiting soy. I tend not to eat packaged foods or fast food. I may add in organic eggs every now and then. We will see. Hope this helps.
    2a wavy. acv is my friend. flax gelee weighs down my hair too much.

    cleansers: giovanni, curls
    conditioner: curls
    styling: LA Looks sports gel
  • liv490liv490 Posts: 2Registered Users
    I was diagnosed with PCOS a couple years ago. Luckily they caught it pretty early (I was 16 when diagnosed), so thankfully I never had a huge problem with weight or unwanted facial hair.
    Changing my diet to a primarily diabetic low-gi diet (and taking metformin) helped tons, especially because all the extra mineral goodies in the food made my hair and skin a whole lot healthier. I've noticed it's growing quite a bit faster too! I'm going CG which is helping further. So to those curlies who mentioned they hadn't done a diet change, trust me, it's worth it!
    For anyone else having trouble with thinning hair, extra vitamins are always good - I've found complex-B (with biotin), vitamin A and fish oil help a bunch. Zinc is good too, and works wonders some of the skin problems that often go with PCOS, especially with young people like me :P
    Good luck to all those curlies dealing with PCOS!
  • mcpherson1997mcpherson1997 Posts: 2Registered Users
    I came across this thread after looking for answers on google. I see no one has posted recently but I was just curious to know what the latest products/solutions that are out there to help manage thinning hair related to PCOS. I have tried so many different products trying to add some volume to my hair and NOTHING. I did some research on natural treatments for PCOS. Thought I would give it a try because nothing else helped my hair. For the last month I have been taking zinc, omega 3 and B vitamins. Last week I incorporated maca which is an herb that is known for restoring hormonal balance. I found an interesting article listing several natural solutions for PCOS from detoxscientific and is related to the PCOS diet. I have made changes in my diet such as low carb, low fat and gluten free. My hope is that with restoring my hormonal balance naturally I can atleast prevent my hair from thinning more. Does anyone have any insight on the long term success of the use of supplements?
  • amy51373amy51373 Posts: 1,204Registered Users Curl Neophyte
    My naturepath recommended I take Zinc 50mg and Salmon Oil instead of fish oil because it absorbs better 3x a day...he also recommends Solaray brand since they test well on the body more so than others. I also take Kyo-Greens 3 times a day as well...it doesn't taste great but I do feel much better since taking it. I also use a few essential oils to help with it all but since I just got diagnosed about a year ago, I'm still trying to figure out what works best for me. I have noticed less shedding and even the other night swear I saw some new hairs sticking up on my scalp!
    mostly 3a/fine/high porosity/low density
    Cleanse: Bosley shampoo and conditioner
    Stylers: Boots Curl Cream, Uncle Funky's Daughter, Curl Keeper
    Gels: Volumax, Biolage, EcoStyler, BRHG
    Shea butter to scrunch out the crunch and seal
    Modified CG since Feb 2008
  • DeltaOrionisDeltaOrionis Posts: 27Registered Users
    *joins the pcos club*

    I've been shedding like a damn cat since early teens, and it was my then hairdresser who suggested it's hormone related. 5 years later I had the worst acne triggered by preparing for college entries and started taking hormonal pills. It settled down pretty soon, quit the pill, and it has been under control for the past 10 years, but I keep losing tons of hair never the less. :(
    2C/3A Med/High Porosity/ Medium Density/

    Faith in Nature Aloe Vera shampoo+conditioner
    or JĀSÖN Aloe Vera shampoo+conditioner
    Miaflora Argan Oil, Toni&Guy Sea Salt Texturising Spray